Kinda large for a first time buy, but what the hell. I ordered about 3 weeks ago. At first the email correspondence was fair considering the time difference between our two countries. Then I get a tracking update stating that pack was being held by us customs! Sh!t! So I emailed the guy 2 or 3 times with no response. Then i just happen to check the mail today and there it was. A letter to come pick up a registered mail package at the post office. Long story short, my gear came in. Entire order was present with descent packing and professional looking packaging. Im going on vacation this week on thursday be back next wednesday to start my cycle, so i'll keep ya'll updated with my progress and let you know if this stuff is the real deal.
I have been on the trial for this drug and it will last for another year, so I haven’t had to pay for a thing out of pocket. I do agree that we are all just guinea pigs, especially since with this trial, they are only covering MRIs of the brain, not also of the spine. So what if there’s no activity in my brain, but there is in my spine, but without any physical effect? I’m only 23, I was diagnosed at 14, and this is the fourth drug that I’ve been on. Avonex didn’t do a thing except make me feel like I had the flu for half of the week after the injection, then it was almost time for the next shot. On BetaSeron, I also had to add on monthly prednisone infusions because I was ending up in the hospital with a relapse every three months. Finally, at 17, I was given the approval to try Gilenya. It had just been FDA approved for people 18+. This was a life saver. In the almost four years that I was on it, I was only in the hospital once. Towards the end, my neurologist said that there was disease activity in my brain that wasn’t showing itself physically, which can end up being extremely debilitating. That’s where the trial came in.
Since I’ve been on this new drug, I haven’t had many issues. I don’t know if my increased fatigue is due to the medicine or because I work 50+ hours a week, go to college full time, and have a hard time falling asleep. I was offered medication for energy, but it said that it was used for the flu and Parkinson’s disease when I looked it up, so I decided not to take it. The only thing that truly bothers me is that my body aches a lot. Far more than it ever used to. That’s actually what brought me to this page tonight. I looked up pain associated with this medicine because I’ve never had my bones hurt in my hands and my shoulders like they do now.